Promoting emotional wellness in children with cystic fibrosis, Part I: Child and family resilience
نویسندگان
چکیده
Abstract Attention should be given to individual and family well‐being from a child's first interaction with the medical team continuing throughout development, especially for families who experience chronic illnesses, such as cystic fibrosis (CF). While much attention has been mental health of people CF 12 years older, this paper explores various areas teams assess provide additional resources during life promote child wellness. In paper, we discuss parental health, social determinants adherence/self‐care, nutrition, lifestyle factors, engagement school peers, modulator therapy age group CF. This is two companion papers which examines emotional wellness children early years. The second assessment intervention under 12. Both encourage strive optimal wellness, emphasizing holistic promotion prevention, identification, intervention.
منابع مشابه
Prevalence of Cystic Fibrosis Trans-membrane Conductance Regulator Gene common mutations in children with cystic fibrosis in Isfahan, Iran
Background: Cystic fibrosis (CF) is the most common lethal genetic disorder of Cystic Fibrosis Trans-membrane Conductance (CFTR) Regulator gene mutations. We aimed to investigate common mutations in CF patients and to assess its possible relationship with clinical presentations. Materials and Methods: This cross sectional study was conducted on 36 CF patients who were referred to a tertiary ped...
متن کاملCYSTIC FIBROSIS Airway remodelling in children with cystic fibrosis
Background: The relationship between airway structural changes and inflammation is unclear in early cystic fibrosis (CF) lung disease. A study was undertaken to determine changes in airway remodelling in children with CF compared with appropriate disease and healthy controls. Methods: Bronchoalveolar lavage and endobronchial biopsy were performed in a cross-sectional study of 43 children with C...
متن کاملCoincidence of Cystic Fibrosis in Mother and her Child Related to Infertility
Cystic fibrosis (CF), the most common life-shortening, hereditary disease in whites, manifests itself principally in childhood. Patients presenting with CF as adults appear to be different when compared to patients diagnosed with CF during childhood. Often these patients have been previously diagnosed with asthma, chronic bronchitis or emphysema. We present a case of a woman diagnosed with CF a...
متن کاملIdentification of Dermatoglyphic Patterns in Parents of Children with Cystic Fibrosis
Background Dermatoglyphics could assist in the diagnosis of congenital abnormalities. The aim of this study was to identify the dermatoglyphic patterns (finger print pattern type, total ridge count of each finger, a-b ridge count, and articulotrochanteric distance [ATD angles]) in the parents of cystic fibrosis children. Materials and Methods We recruited 75 parents of children with cystic fibr...
متن کاملPromoting Resilience in Children and Youth
Preventive interventions focus on reducing risk and promoting protective factors in the child as well as their cultural ecologies (family, classroom, school, peer groups, neighborhood, etc). By improving competencies in both the child and their contexts many of these interventions promote resilience. Although there are now a substantial number of preventive interventions that reduce problem beh...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Pediatric Pulmonology
سال: 2021
ISSN: ['8755-6863', '1099-0496']
DOI: https://doi.org/10.1002/ppul.24958